I’m enjoying a two-day conference on the empowered health consumer (ePatients 2009) – one of the most enjoyable aspects being hearing directly from people with diseases (such as diabetes) who are living out the management of their conditions on-line.
I was taken aback late yesterday when one of the diabetes bloggers mentioned the constant GUILT that they labor under – and others chimed in to confirm this. This had not occurred to me before – just take your meds and manage your diabetes, right? Umm…no. It’s much more complex, apparently, and impacts people on many levels.
Later, while chewing on this, I realized that I did understand – I labored for decades under the relentless assault of undiagnosed and untreated depression, and sure enough, I lived with the guilt of it every day – not feeling the things I knew that I should, and constantly pushing the stone uphill every day in an unending cycle of self-doubt. Feeling like a burden to others. Feeling like I’m not overcoming.
So now this has me wondering – is this a regular “feature” of these long-standing, somewhat-manageable diseases? Even when you’re being treated? I’m very curious about the experiences of others with diabetes, or CF, or MS, or other conditions – are you taking your meds with a dose of guilt each day? Please give your insight in the comments. Your voice is important.
[and read this related post from Kerri Sparling, who has first-hand experience. The last sentence is the payoff]
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